As a proud partner of CureSPG50.org we would like to share Michael Pirovolakis’ story. He is wonderful little boy who has been diagnosed with an extremely rare neurodegenerative disease. He is the only person in Canada with this disease; and less than 60 have been diagnosed worldwide. This disease will gradually take away Michael’s ability to function both mentally and physically. His parents (Terry & Georgia Pirovolakis) are in a race against time as they need to personally fund research to find a cure for their little boy through gene therapy. They need to raise $3MM in order to give their son a chance at life.
Please see the links below to find out more about their story and how you can help!